If you’re in your teens and still going through puberty, don’t take this shit. I’m kind of worried and the section on the video confused me. If it wasn’t for her, a lot of things, wouldn’t have happened, in my life, because I have a jealous mother. You people that think this is your saviour may not realise the horrendous damage this cancer drug is doing to you now, but in time you may get problems which no one will relate to this drug years later.. I was the 1% who had a bad outcome. So, I just continued to do my own thing, and get ignored. I take Accutane, and I experience NO side effects other than mildly dry lips. Out of nowhere I started to get severe acne all along my jawline, chin, neck, and temples with occasional pimples in t-zone. His dad and i will try to do all we can to carry out his wishes and to help other sufferers. He suffers from sudden, uncontrollable anxiety attacks and has attempted suicide several times. It is advised that you do not workout whatsoever because, at a molecular level, bodily repair becomes difficult, ex. That was at 3 months into my accutane course and I was going to stop but all of the doctors assured me that as soon as my b12 was up everything would be okay. Accutane destroyed my bowels. I don’t know what I would have done. I’m just stating what I believe to be fact. Mad props to Stefan for being brave enough to share his story with all of us! I took humira for 4 years and I also started having symptoms of Hidradenitis suppurativa in my arm pits. Trust me, i felt the same way before I had taken it. Hair Loss 10. The thing is the second month I was on it, i also took a liver support supplement along with isotretinoin. i was told that it was not a symptom of Accutane but did some research myself and found that it was. I can’t say enough good things about this website. I’m so sorry for what you’re suffering, Stefan. I believe there are many more people that have had side effects but they don’t talk about it maybe because they are ashamed or the clear skin was worth the risk. I had seen a derm for years and tried every drugstore tx and prescription under the sun. My mom does another incidence of embarrassing me, by telling me to come over to my next door neighbors, for shelter, because there is a storm, which has really already passed, but she just wants to get me out of the house, and embarrass me, in sunlight, because I was just fixing to get in the shower, and had waited too long, before taking a shower, and my face had built up, a lot of oils, and she wanted to embarrass me. I was afraid I would be wrinkly as I got older, but I am told I look younger than my 51 years. well, I’m really sorry for what happened to him… but I gotta say… he is sooooo damn HOTTTTTTT!!!!! Hey I know this guy, I saw his youtube channel a long time ago. Entitled much??? Acne, depression and living with all this made me very self conscious, I even skipped lectures because my face was so inlamed. I am putting together a report to give to my doctor and any other professional that I see in the next few months. I’m so sorry that you’ve had such terrible problems as a result of this drug. It has gotten to the point where I cannot sleep through the night. I’m just now learning about the other terrible side effects and maybe this could be an explanation for my bad mood, depression and sometimes suicidal thougths (I always believed it was common for people to feel down from time to time but never spoke about it). My acne has improved a bit. Honestly, the last 4-5 years of my life have been horrible. Yay!! "But as powerful as Accutane can be in improving patients' lives, the adverse effects can be just as powerful," states FDA Consumer magazine. He’d had decades of experience treating patients with the drug and his method was to begin at 10mg every second day for 6 weeks, before gradually raising that to every day, and after 3 months I was again titrated up to 20mg and another 2 months was raised to 30mg every second day alternating with 20mg on other days, but only so long as I could handle it. I hardy had any side effects except for dry lips that could be treated perfectly using Carmex. I couldn’t use the bathroom only 1 time a month. Which have you rather prefer? And they seem to be more followers. If you focus on something that is clearly a negative situation and focus most of your energy on it, it can make things seem unbearable. All the best love and light. I had tried EVERY other pill or cream prescribed by my dermatologist. My sister took around 40 mg a day for 4 months I believe. This is a decision I’ve been going back and forth over for YEARS. As I said last time, I cant speak for every dermatologist or doctor but mine DID NOT inform me well enough of the potential side effects. Also, but for me, it was SO, SO difficult to get Accutane. PLEASE reconsider. This could give you pain and scars. I haven’t been diagnosed with IBS or Crohns, yet, but the last 10 years have been terrible in many other ways. I have tried pretty much everything under the sun to treat my acne and nothing has helped (which is why I’m starting my course a bit later than most people do.) why do you think that it stops acne, tell me? I have since come off of the pill and my acne is back with a vengeance. Well I have always suffered from severe anxiety. I pray that dermatologists stop prescribing this. Once I started taking them I became very depressed which has lasted the rest of my life. I called my dermatologist today and she’s told me to treat the symptoms of my tummy otc and to go to taking my pill every other day to see if that helps. Was clear skin worth this- ABSOLUTELY NOT. My self concious took over and I thought the pill wouldn’t hurt me. In retrospect, this was the worst decision of my life. soo so desperate. Check with your doctor immediately if any of the following side effects occur while taking isotretinoin: Some side effects of isotretinoin may occur that usually do not need medical attention. Good luck on your continued journey , I have to share my story with acne quickly. help me please…. I hid it very well. Not compared to what I’ve experienced. I also have developed extremely irritable bowels. He was such a dear and wonderful son, so talented and so kind, to the very last. Dying to hear that I’m not the only one…. I’ve seen their acne improve without really doing anything about it. The acne was unresponsive and caused me shame and depression and probably spoiled my chances of a highschool relationship. While it’s not as bad as it was when I was on the medication, the medicine basically ruined my life and the relationships that I had and future relationships with those close to me. to say in other words, this drug is literaly a castration drug that has the power to feminize men. Very sadly, after being treated in an appallingly confrontational manner by a particular psychiatrist, even though once again we had tried to show that our son was struggling with BDD and had been treated with RoAccutane several times over the 11 years, he was made to feel that his suicidal feelings were all his own fault, and that basically, he should ‘get a life’. They just wanted me to hand over my money, and take a position, of inferiority, within the relationship, and allow him, and his mom, to take over things, and manage my money, as if it was his… and he was constantly, putting me down, saying, that you don’t look like that, and he wants my money, that it works, you don’t just get to come into someone’s life, put them down, and tell them, that they are not good enough, for a relationship, with you, but you want their money, and so that you and your mom, can stay in charge of your money, you have to accept this inferior position, haha, yeah, right, I’m responsible, for a reason, and that means, that you will not be in charge of my money, as if I’m an addict too, just because you want to be connected to your enabler, mother, and have her to continue to enable you, so that you won’t have a real relationship, with another female, because you are too immature, and you are not used to managing your own life and taking on responsibilities. your eyesight? I wouldnt take the risk , its not worth it. Today I’ve come full circle. Don’t ever take these horrid fucking pills. I am so sorry you suffered from this too. We think it may be from the Accutane. In other forums, discussing the reality … My Skincare Secrets: An Interview With Me from Beautiful with Brains, 5 Supplements that Help Clear Stubborn Acne (plus one you should avoid! Therefore, I am with you and am wishing you all the best. I think gradually the scientific truth will come out about this drug, but writing just as an ordinary person right now, observing what seems to be happening, it does seem to me that hormones play a big part in this. He has not worked in years, dropped out of school and has removed every friend he has ever had, except for me. Its very brittle and destroyed. I kicked dairy and sugar, I consume no junk whatsoever and still, my skin won’t clear on its own. So i must contradict Dr Reukle on this. after having done enemas, grain-free, dairy-free, all whole foods, supplements, natural skincare, sun and earthing, exercise/yoga, drinking lots of water, candidates cleanse, liver cleanse… the list goes on. Joint Pain 3. Has anyone else post-‘Tane experienced a marked premature decrease in skin moisture and elasticity, and/or a pocked translucent ‘chicken-skin’ like effect around the bags under eyes? I also wished to be able to cure my acne in a more natural way. Bottom line, do not use this drug unless your acne is so bad that is interfering with your daily life. My acne returned, but my depression subsided. (Black circles). Note: This document contains side effect information about isotretinoin. Hi Porridge, From my understanding, it helps your body to detoxify the bad estrogens, but at the same time helps to increase good estrogen. Brian, dunno if you visit this page anymore, but I would like to hear about your story and how you treated yourself as I have been experiencing severe agony in the past few years. I want to jab a knife in my neck . Now they are saying that i may have neuropathy. I recently met with a friend of mine who has started taking accutane. I know darned well there are so many tough cases that go unreported. Sending you lots of healing love . It’s not even listed as a side effect. I also took this horrible drug as a teen. I had terrible anxiety, though at that time I hadn’t heard of anxiety, so I was just in a world of confusion. Well, it’s a hard road, and a hard journey, and I guess you don’t get the parents, or the children, that you want, because honestly, maybe she would have liked to have had perfect children, without imperfections, and I would have liked to have had a mother who was compassionate, and loving. I was the 1% you read about on the internet…that rare occurence of severe, burning dry eye that won’t go away. They sent me in for an MRI and found that I had 7 lesions in the white matter of my brain that had formed in recent months. The pain is debilitating. Man i hope you´re better! Now, my boyfriend, at the time, was there, for her, to embarrass me, in front of, which was, why she did it, I believe, to embarrass me, and put me down, in front of him, and she knew that I really liked him, and she would flirt with him, in front of me, and put me down. Also, here is a link to the documentary that aired in the UK: http://www.youtube.com/watch?v=PgpYS33kMVc. (I was prescribed Diane for the acne!) Before accutane 8 hours of sleep for me would be perfect. His eye lashes kept falling out, joint pain, bone pain, stomach pain, insomnia. But then, I didn’t, and I’m not sure I ever would have if not for my experience. My mom has never bothered to tell me. We’re here for you Myranda! Pretty disappointed no mention that Stefen seems to no longer feel accutane caused his emotional issues… that he placed blame but now realizes the FULL cure of his acne and emotional state were separate things. you don’t look like that.” He kept doing this, day, after day, saying, “ha!” He thought it was so funny! My daughter started treatment on it last year in October aged 12 by January a week after her 13th Birthday she was diagnose with Type 1 Diabetes, Her hair is also falling out from the after affects of taking this drug and the acne is reappearing. I then noticed that my skin was way more elastic than what it used to be. My overall health got so much better. We tried prescriptions, and nothing, really worked. So, anyway, I, during my most formative years, rebelled, against everyone, and said, f**k you, because they weren’t accepting me, and of course, I did, want to be accepted, and belong, even Maslow’s hierarchy of needs, suggests the need to belong, so, of course, I wanted to fit in, and belong, but since they didn’t accept me, I guess, it didn’t matter, what they think anymore, so, I just said, screw this, and didn’t care what anyone thought, and focused on clearing my skin, and doing what the doctor said, kept my hair back off my face, and cleaned my face before school, but of course, it was going to get oily, during the day, but I was keeping my face clear of any makeup, which would make the problem worse, I didn’t care what anyone thought, they didn’t understand, but they weren’t asking, Either. I’ve been prescribed 1 40mg per day. The psychiatrist in 2001 rubbished any suggestion that we needed to have concerns about RoAccutane. I still think it’s crazy that a chemotherapy drug can be prescibed for acne. It does get better over time i am living proof keep on fighting. Just because I was wearing makeup, last time, that doesn’t mean that I have to wear makeup, everytime, nor does it mean that I wouldn’t recognize her, without makeup, or that she shouldn’t recognize me, and she was saying all of this, while standing behind her iron bars door that she placed in front of her front door, on her house, for protection, because of her old age. It was a last resort because nothing else I was on was working. Fuck the doctors who recommended this drug when I wasnt mature enough to realize the long term risks. The whole range of systemic issues simply is not worth it, and I wish my dermatologist had been more forthright about warning me of these. The past few years I have leaned how to heal my crohn’s with out pharmaceuticals, just diet. It gave me a depression I am still suffering from and will presumably suffer from for the rest of my life. All they ever do is invent things that don’t actually fix anything. This is WRONG- symptoms can appear months, or possibly even years, later. The few creams that seemed to work, did so only for a month or two. Very curious to find out what you did to fix your thyroid problem, as myself and everyone with these side effects has either been diagnosed hypo or has the symptoms. Isotretinoin, better known as Accutane, is the acne drug of last resort. This story is so close to my own. I thought maybe I had just “grown out of it” but my acne has come back at age 21. And thank you, Stefan, for spreading the word. But, bad outcomes are a reality. So, I stopped wearing makeup, and pulled my hair back (which wasn’t very attractive). I took accutane for 5 months or 4 ; and my acne went away. When I take a tablespoon of olive oil, the next few days … It had been building up over time but in the last weeks, he said it was so bad he said he also had voids when he could not think or see clearly but he didn’t say he had an actual ‘inverted’ image. However he insisted i have monthly blood tests to monitor my liver and cholesterol levels, and warned me to stop using the drug immediately if i noticed any kind of vision problems in the first few weeks. I know people who have had cancer, gone through years of chemotherapy and managed to 100% regain their health through holistic means. I have lost and continue to lose A LOT of hair and my eyes are dry and bloodshot at all times. I never went anywhere near my LASIK surgeon following those initial sad, desperate follow-up appointments post-surgery. Head Pain 11. Mine was not SEVERE, but it was to me… The thing that bothered me the most was the oiliness. O 0. In fact the last video I saw by this guy was months ago, in which he said that he started to feel better after cutting down his stress. Originally i thought it could be PCOS but blood test came back negative so I asked to give isotretinoin a try again. Should I be concerned? I struggle with severe abdominal pain, nausea and vomiting daily among so very many other symptoms that keep me going regularly to my gastroenterologist. Thanks Stefan for getting the word out there on accutane. I also began taking Roaccutane when I was 15, almost until 18. Many of us take for granted our body and our abilities to walk,run, get out of bed, see, feel happy. I experienced the extremely dry skin and lips and some of the other side effects, fortunately I didnt have any of the psychological effects (That I can remember) but years later have been diagnosed with Crohn’s. I’ve been in surgery induced menopause since I turned 32. No matter how little stress there is. This articles definitely made me cry. For me it worked, with a bit of dry skin. If your blood work reads that you’re liver is suffering, you cannot continue! Your absolutely right, accutane is a death sentence, hI absolutely agree with this post. I’m not saying that Accutane didn’t cause all three of your illnesses, but I think it’s a stretch to assume so. Also, your health care professional may be able to tell you about ways to prevent or reduce some of these side effects. I accept that the jury is out on whether this drug is lethal in some cases or not. I just sent you an email telling you about Accutane saving me from suicide AGAIN and now there’s this post. I got picked on for things, like dressing, how I wanted to dress. I took this drug a few years ago, I am grateful I haven’t had any apparent side effects, but I still wish I hadn’t gone on it. Good luck, just say no. Thats what im experiencing now, gallbladder was removed because it was dead, i had tendinitis surgery, carpool tunnel, and now at 47 my lower back to the top of my neck hurt BAD!! Note that this was in 2005. Then, she wanted to put me down, and dress me, in these ridiculous clothes, which one of my grandma’s was my only source, of stylish clothes to wear to school. I am slowly weening off my medications and starting to become stable. Along with its needed effects, isotretinoin (the active ingredient contained in Accutane) may cause some unwanted effects. hmm,, iam just wondering, why are these accutane side effects last for a long time for some people.so is it possible, that your liver stores accutane for a long time? If not, would he do so? Different name, same stuff. It’s really interesting, though: http://www.amazon.de/Die-Sprache-Haut-Wechselspiel-K%C3%B6rper/dp/3491421063. Apologies Erin, as I’m taken! He is now 22 and still suffers with joint pain, stomach issues. I went on to have two more children, a feat I never thought possible in those dark years post-LASIK. Thanks! I knew about the physical hell from a friend, but I had no warning of the mood effects. EVER! Your liver does store excess vitamin A when it can. I later discovered 15% glycolic acid, which actually helped clear acne and scarring. I am also easily prone to IBS-like symptoms that were not present prior to Accutane. And there is sooo many other medicined causing side effects, even chemiotherapy may kill you which doeasn’t mean cancer should not be treated right? Most people who take this, and other drugs, don’t have terrible acne that won’t go away with some support. As I said, it took me years to recover from Interferone but in the end it worked. I am now 33, I feel that my brain was broken somehow. About a year later I suffered extreme weight loss and chronic fatigue. 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